Consultations

Recent consultations NPPG has responded to as of December 2023

Thank you to our committee members and our specialist interest groups for the comments received on recent consultations.

Since the previous full committee meeting in July the following consultations have been reviewed:

NICE

STA

Vamorolone for treating inflammation associated with Duchenne muscular dystrophy [ID4024] Deadline 22 August 2023 for expert nomination, 4 October 2023 for comments

Divesh Pattni (GOSH) nomination submitted 03/08/23.

Circulated to committee members, NICE letter thanking Divesh but confirming that she had unfortunately not been selected to the Appraisal Committee meeting. Information to register to observe the meeting was provided.

NICE MTA Multiple Technology Appraisal for Ivacaftor–tezacaftor–elexacaftor, tezacaftor–ivacaftor and lumacaftor–ivacaftor for treating cystic fibrosis [ID3834]. Joint statement: NICE and SMC/HIS collaboration. www.nice.org.uk/guidance/indevelopment/gid-ta11187 Circulated for information to committee members on 16/08.
NICE MTA Multiple Technology Appraisal (MTA) Nusinersen and risdiplam for treating spinal muscular atrophy (review of TA588 and TA755) ID6195 Circulated to committee members 17/08/. Deadline for comments Friday 25/08/23. No comments submitted 24/08.
NICE

HSTE

Highly Specialised Technologies Evaluation – Fosdenopterin for treating molybdenum cofactor deficiency type A ID6264. Draft Scope Consultation and invitation to Workshop on Tuesday 26 September 2023. Circulated to committee members 17/08/. Deadline for comments and workshop response Wednesday 23/08/23. No comments submitted 23/08.
NICE

STA

 STA – Leriglitazone for treating adrenoleukodystrophy ID3903. Draft Scope Consultation and invitation to Workshop on Monday 25 September 2023 Circulated to committee members 17/08/. Deadline for comments and workshop response Tuesday 22/08/23. No workshop responses.

No comments submitted 22/08/23

NICE STA Acute Respiratory Infection in over 16s: Initial assessment and management. In development [GID-NG10376] Expected publication date: 30 October 2023 www.nice.org.uk/guidance/indevelopment/gid-ng10376/consultation/html-content-4 Did not circulate as >16 years and specifically asking for comments on NEWS2 as an appropriate tool.

Deadline 5pm on Friday 15 September 2023.

NHSE Spec Comm NHSE Specialised Commissioning
Feedback on two revised service specifications for Specialist Cancer Stereotactic Radiosurgery (SRS) & Stereotactic Radiotherapy Services.
Circulated to committee members and Chair of POP and POP BOA link member 28/09/23.
NICE MTA Technology Appraisal Committee update and Meeting to be held on Thursday 12 October 2023
Ivacaftor–tezacaftor–elexacaftor, tezacaftor–ivacaftor and lumacaftor–ivacaftor for treating cystic fibrosis [ID3834]. Included links to register directly on Zoom
Circulated to committee members 28/09/23. Also sent to Chris Paget and MFT CF Lead Pharmacist 03/10/23.

Registration closed 4:00pm on Thursday 5 October 2023.

NICE STA STA Belumosudil for treating chronic graft-versus-host disease after 2 or more systemic treatments in people 12 years and over [ID4021]. Draft guidance document Circulated to committee members and Chair of POP and POP BOA link member 05/10/23.

No comments response submitted on 25 Oct 2023.

NICE

MTA

Multiple Technology Appraisal (STA) – Ivacaftor–tezacaftor–elexacaftor, tezacaftor–ivacaftor and lumacaftor–ivacaftor for treating cystic fibrosis [ID3834] Draft Guidance Document Circulated for comments to committee, Respiratory Group and chair of respiratory group on 2/11/23. For Appraisal Committee meeting 14th Dec. Deadline 5pm 24/11/23

Submission received from Sukeshi Makhecha from RIG to RDTC NPPG inbox at 1.10 Friday 24/11/23. PR off and RDTC colleague had checked it at lunchtime just before that and so it was unfortunately missed. Submitted by PR anyway but rejected due to missing the deadline. PR emailed SM to explain with information for registering to observe the STA meeting on 14th Dec. Additional RDTC Team members to be included in monitoring NPPG inbox.

 

CCA – Cost Comparison Appraisal; STA – Single Technology Appraisal; QSU – Quality Standard Update; SpecComm – Specialised Commissioning; MTA – Multiple Technology Appraisal; HTSE – Highly Specialised Technologies Evaluation.

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